Sam Stosur WTA Tournament of Champions Sofia

My battle with Lyme Disease

I first started getting symptoms in July 2007. I was at Wimbledon playing and woke up one day with a lump in the side of my neck. I got some tests done as they didn’t know what it was and they weren’t too sure what they were looking for. Nothing came out of the test.

As the next few days followed I got more symptoms, which included inflamed glands, puffiness in my face and neck, a rash all over my body, extreme tiredness, headaches, body aches, swollen hands and feet.

Each day I would have something new and the doctors weren’t sure what was going on.

I think I saw four different doctors at Wimbledon. I had blood tests done and they didn’t show anything too definitive but it was thought it could have been rubella. Once I returned home it was decided that was the diagnosis.

I took about six weeks off and thought I started to feel OK. I was still puffy looking all over like I had gained weight but my weight hadn’t changed. No one could tell me not to start playing again so I practiced a little and then went to the US to play one lead-up tournament before the US Open and then the US Open.

I was nowhere near prepared enough and lost badly and then at the US Open I lost in the first round. Worse still, I was absolutely exhausted after the first four games of my first-round match.

I stayed in New York to practice with my coach for another week as he was coaching some other players too. We decided I needed to get fit again and lose the puffiness look I had going on. We practiced on court for about 1 to 1.5 hours a day and then cardio on the bike each day. It wasn’t very high intensity but I really found it difficult.

After training like this for five or six days, I started getting chest pains during dinner and periodically it would hurt to breathe. I tried to not think much of it and continued to go out with my friends but as the night went on it got worse and worse.

I went to hospital at about 3 am for tests and they couldn’t really find anything. I thankfully had the help of one of the trainers from the WTA with me and we left the hospital at about 8 am and went back to another one around 11 am as my pain was getting worse. By this stage I was also feeling nauseous.

I had more tests done and the doctors still couldn’t find anything. I spent the next day in my hotel room and didn’t go anywhere and felt somewhat OK so I decided to fly home to my training base in Tampa, Florida.

On the flight home I started getting a shocking headache and by the time we landed my head was pounding. I went to a friend’s place as I felt terrible and as that afternoon went on the pain got worse and worse.

I went home that evening and tried to go to sleep but by 6 am I couldn’t stand the pain any more and called my friend back to get her to come get me and take me to hospital.

Once arriving there they did a couple of tests and told me I had sinusitis so they sent me home with some painkillers and that was that.  It turned out I was allergic to what they gave me so that made me sick and I knew the pain I had was not sinusitis.

I spoke to one of the WTA doctors on the phone that afternoon and she told me to go back to hospital and get more tests done. By about midnight the doctors came in to tell me I had viral meningitis and I had to stay in hospital.

I had a spinal tap to relieve some of the pressure and pain I was getting and stayed in hospital for the next three days. From that point I went back home and got the post-tap headache, which they said I would get and for the next seven or eight days laid in bed or on my couch and slept as much as possible. Whenever I sat or stood up I would get a pounding headache but as long as I was horizontal I was OK.

It was a horrible week and I didn’t leave my apartment for the whole time.

Thankfully the same friend who took me to hospital lived close by and would bring me food and go shopping for me as I couldn’t leave. My dad was then able to come over from Australia and he spent the next few weeks with me. Once I was able to walk around without getting headaches I went to see an infectious disease specialist in Tampa as it was decided what was happening to me was all part of the same thing and we had to work it out.

After a couple of weeks of seeing this doctor and  having several different tests and visits to him he diagnosed me with Lyme disease. I had never heard of it and didn’t know what it was. He explained to me it is extremely hard to diagnose and you have to base it on symptoms as well as what the tests come back with and he was sure that’s what I had.

I went on two weeks of oral antibiotics followed by four weeks of intravenous antibiotics twice a day, four days a week followed by another two weeks of oral antibiotics.

I was told to not do any exercise during this time and really try to do as little as possible. I pulled out of all the remaining tournaments for the year and based myself in Tampa during this time. After this period it was decided I was probably well enough to fly home to Australia but was told I still had to take it easy.

I eventually started back doing very easy exercise and followed the WTA trainer’s and doctor’s advice very closely as they said I could relapse if I did too much too soon as my immune system was still working so hard to keep me healthy.

My exercise  program started with a 20-minute walk every other day and keeping my heart rate under 120. That was nearly impossible, so I did this for a week then started walking every day then bumped it up to two 30-minute sessions and then I could gradually keep increasing the volume as long as I kept feeling healthy.

I started tennis practice in late February/March and trained until my first tournament at the end of April. I was worried the travel and jetlag was going to be too much so I went to the States much earlier then I would normally to acclimatise myself to the time change and weather conditions and made sure I didn’t start training there too hard too fast.

From this point I played two Challenger tournaments and then took two weeks off, played a WTA event in Rome, took another week off and then played the French Open.

There were some days leading up to the French that I felt really tired and unwell so whenever this happened I took the day off and really monitored my health and how I was feeling before I would train anymore. By July I really felt quite good and continued my playing schedule and haven’t looked back since.

On realising how dangerous Lyme can be I’m really glad I followed what the specialists told me and really took it slow to get back to normal. I think the thing that helped me a lot is that I was in the USA when I was eventually diagnosed. It is nearly impossible to know when I contracted it as I travelled through a number of European countries before falling ill in London. From there I went  to Australia where Lyme isn’t recognised and then back to the States.

Since  getting back to full health I have never felt any symptoms come back or relapsed in any way.

  • Amazing history Sam, best wishes for this US Open. You are a great player :)

  • Dear Sam, I have always been a fan, and after reading this I am even more impressed with the strength of your character. It must be hard sharing such a personal battle with Lyme disease and I thank you for doing it for the people with similar struggles! Great to watch you at the Open! Go, Sam!

  • Deb

    Sam, you are an inspiration to so many people of all ages. Good luck in the future x

  • Stew

    Unfortunately it will probably come back at some point in your life, stress can agitate it. We are never cured. You should keep up with herbs such as SAMENTO and BANDEROL..Lyme Nosode spray..No way Lyme disease is cured with a few weeks on abx. It will turn chronic, it hides in your system and hits you when least expected..Change your diet, no sugar, wheat, alcohol, gluten of any kind, coffee and MINIMAL fruit..(its sugar)..Good luck and do NOT listen to that doctor!

  • Sophie Tynan

    I contracted Lyme disease in 2011 and was diagnosed in 2012. I am still waiting for proper treatment and rehab. I’ve gone from being very active and healthy to unable to work or even walk very far. Hearing your story and knowing that it can get better and even back to full health gives me hope for the future. Good luck with the 2013 season!

  • Nicholas Caplan

    Sorry to hear this, glad that you have recovered. I was forced to be mentally ill in 1990 and won’t say what happened to me as no one can admit what they did wrong to me. Hospitals treat those well when there really is something wrong like when my arthrits started in 1993. It is all well controlled now and with the mental illness luckily for the hospital the medication is working. I also used to have a speech defect and that is cured as well.

  • Christine Brown

    Hi Sam,

    Your fight with Lyme disease has given us some hope as our 9 year old granddaughter has been diagnosed with the disease after a 2.5 year struggle, She now finds it hard to walk, has brain fog and lots of joint and chest pains.
    I think it would do the Australian Lyme Disease Associations a lot of good if you could come out in support of them as the more people that are aware of this disease the sooner it may get recognised in this country. Of course a patron of your standing would also help greatly.
    I would love to hear from you.

  • inisheer

    Sam I’m so glad you posted this. Lyme Disease is such a terrible problem that people don’t seem aware of. I was actually in the stands to see you win the U.S. Open over Serena a few years ago. If that’s not a full recovery I don’t know what is! Good luck always.

  • we can’t stop

    You are so strong, I have learned a lot with you, the way you are, its just so amazing, girl. I admire you, I have been growing up with you, and that´s the way it’s going to be always.

  • anibalh

    ¡¡ Oo , no sabía de esto que le abía pasado a Sami , que rara enfermedad , pobre Sam , por lo dicho se a repuesto bien de ella…

  • SilverPersian

    Might be nice to put this cartoon somewhere on the website :-)

  • you are the strengh that I need in my life, everytime I feel bad I think “if sam did it, I will do it to”
    you are helping me so much in my life and you don’t know it
    you’re a big inspiration for me
    love you